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Multiple Sclerosis?

Discussion in 'The Atrium' started by longtimefan, May 9, 2011.

  1. longtimefan

    longtimefan Super Moderator Staff Member Super Moderator

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    Anyone here know of anyone with it?

    Seems I just may have it...Had mri of head and have lesions that indicate it, so along with other symptoms my primary thinks I do have it..

    Have an appt with specialist Thursday

    But want to know what can I expect as time goes on?
     
  2. GreenBayGal

    GreenBayGal Cheese Goddess

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    I am SO SO sorry to hear that, LTF. My sister was diagnosed with MS about 20 years ago. She moved to FLA because the cold bothered her. Daily excercise (mostly swimming) seems to help. I've heard the affects vary from person to person. I hope you never find out what the affects are.
     
  3. longtimefan

    longtimefan Super Moderator Staff Member Super Moderator

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    Can I get a script to move to florida? lol
     
  4. Kitten

    Kitten Feline Cheesehead Staff Member Super Moderator

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    I don't know of anybody that has it but I've certainly heard of it. I'll keep you in my prayers. Hopefully you can get a second opinion if possible so they can be sure of the diagnosis. I wish you the best, take care of yourself!!!
     
  5. 98Redbird

    98Redbird Cheesehead

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    I am very sorry to hear this and will be praying for you.

    My aunt, whom we are very close with was diagnosed with MS a little more than 5 years ago. So, I have watched her progress through it.

    I am going to tell you because you asked, but it has been an extremely difficult thing to watch her go through this. She is now confined to a wheelchair, and cannot speak. Thankfully she has my uncle there to take care of everything she needs.

    From what I remember it started off and progressed slowly, and there are things you can do to slow the progression which your doctor I'm sure will go over with you. But it was her speech which was first affected. Slowly it got worse and worse until now she doesn't speak anymore. Her ability to walk slowly deteriorated as well. She was in a walker for a while and could get around by crawling, but now is in a wheelchair after getting stuck a few times when she was alone. She would start to crawl and then fatigue and not be able to get where she was going in the house.

    The thing about MS is that your mind still stays sharp from what I understand. It still thinks the same way it always did, and I can attest to that after talking with her. Even though she cannot respond you can see that she understands exactly what is going on and is communicating with you through her eyes if that makes sense.

    She honestly has a tremendous attitude and still laughs and smiles... A LOT. But we know it's hard for her. I can only imagine how hard it is to have totally normal thoughts just as you always have but not be able to communicate them in any way. She cannot write anymore either.

    Like I said, I am very sorry to hear that you may have this horrible disease, and I would absolutely get a second opinion, I know that our family did with her.

    Are you close with your family? I know that greatly helped my aunt going through this.

    If you have any other questions feel free to PM me, I'll answer them the best I can.
     
  6. longtimefan

    longtimefan Super Moderator Staff Member Super Moderator

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    Red are you sure it is MS and not MD?

    That sounds like MD to me..

    My speech is affected now, and I struggle sometimes with what I want to say sometimes....Or wrong words come out
     
  7. PackersRS

    PackersRS Cheesehead

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    A friend of mine has been diagnosed with MD since birth. He lost the ability to walk when he was 4, and almost all motor functions by the age of 7. He's a really brilliant guy, one of the smartest persons I've ever met, but he can't do almost anything on his own. He was predicted to die by the age 18.

    He's 30 now, he's married, owns a webdesign company and lives a happy life.

    I'm not very familiar with MS, LTF, I'm deeply sorry to hear that you may have it, but I've seen a close friend survive a severe hereditarian muscular disease and live a happy life. The world is not fair, but you seem to be a happy guy living a happy life. Stay positive, work harder than ever to be healthy, keep your head up at all times, don't let the disease get the best of you, and you'll get through it. I've seen it done.
     
  8. GreenBayGal

    GreenBayGal Cheese Goddess

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    Just another encouraging word...my Sister has no physical apparent affect resulting from ms after more than 20 years. She is now 61.
     
  9. longtimefan

    longtimefan Super Moderator Staff Member Super Moderator

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    PackersRS- Does he have DMD, or duchenne muscular dystrophy? Thats what my son has...Predicting to die about age of 20, he is 13 now..

    My son has DMD...Found out at age of 6...

    MD affects only the muscles

    MS affects nervous systems which in turn can affect muscles

    Finding out there are varying degrees of MS...

     
  10. PackersRS

    PackersRS Cheesehead

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    I'm not sure, man, I don't remember exactly, but I think he does have duchenne, as all of his muscles have been affected, he barely can move his neck now, it appeared on an early age, and it hasn't affected his sister.
     
  11. 98Redbird

    98Redbird Cheesehead

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    No, I'm positive that it's MS. It has varying degrees of how badly it affects different people. It has affected her pretty badly.
     
  12. longtimefan

    longtimefan Super Moderator Staff Member Super Moderator

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    DMD doesnt really affect women/girls...They can carry the gene for it, but since they have that extra chromosome it takes over and fixes the issues...

    They can have some heart issues cuz of it, but more than likely they will never know they have it unless tested
     
  13. PackersRS

    PackersRS Cheesehead

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    Yeah, like I said, his sister doesn't have it, so by that chances are it's DMD. And I'm not great at genetics, but it could be another disease and her not having it would be just coincidential, maybe she didn't get the recessive gene from their parents.

    His mother told me when I was younger which disease it was, but never was one to keep asking, so I don't remember which MD specifically.
     
  14. longtimefan

    longtimefan Super Moderator Staff Member Super Moderator

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    So some updates..

    Saw a neurologist, he didnt think the spots seen by the neuroradiologist was MS

    Losing strength in arms..As it is now my 17 year old step daughter beats me in arm wrestling...Wife can pick up chairs and I cant..Neuro dr pushed on my arms and said strength is fine?? Told him about the arm wrestling and still said I was fine..

    Gave me a 2 min exam and said he didnt think it was MS..Suspected low vitamin B or a thyroid issues..Had lot of blood tests done, and all came back normal...So when I asked if not Ms then what..He had no answers..Was hoping it was the low B, or thyroid

    He ordered a mid back, upper back and neck mri, did those last night..Most intense pain I ever had in my legs..They went numb and burned...Had to deal with that for hour and 20 minutes..

    Told my internist about the neuro and how I wasnt happy, so they got a referral to one the of the best MS dr and should get a call for an appt by Friday

    Have not been to work in 2.5 weeks..No pay either from disability forms been screwed up

    Dizziness has gone away, but tongue is still numb...fingers, feet still tingle, and lower back is killing me..

    Still having issues with speech..

    Just wish this all went away..
     
  15. PackersRS

    PackersRS Cheesehead

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    Damn man, here's hoping you don't have MS and it's something a lot less serious.
     
  16. GreenBayGal

    GreenBayGal Cheese Goddess

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    I wonder if this is related to the (was it leg?) issues you were having a few weeks ago. It's good you're going to see more than one doctor. My prayers are with you.
     
  17. longtimefan

    longtimefan Super Moderator Staff Member Super Moderator

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    I doubt it is related to the blood clot, the doctors all know about that
     
  18. IluvGB

    IluvGB I <3 Packers!!!!

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    Thanks for the update,.. just wish it could all go away for sure!
     
  19. longtimefan

    longtimefan Super Moderator Staff Member Super Moderator

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    Neck and upper back mri show no signs of MS, but neck has disc bulging...Not sure where but that was all it showed
     
  20. GreenBayGal

    GreenBayGal Cheese Goddess

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    Hmmm. Pinched nerve causing numbness?
     
  21. longtimefan

    longtimefan Super Moderator Staff Member Super Moderator

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    Yup could be....But doesnt explain the other symptoms..

    See a MS specialist on June 3rd
     
  22. longtimefan

    longtimefan Super Moderator Staff Member Super Moderator

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    See Khatri!! Guy is awesome


    Anyways, says the mri scan did show something but could been from all bad headaches I had or just a sign
    I am getting older (prev nuero said really was nothing)

    Khatri said I prob have transverse myelitis Transverse myelitis is a neurological disorder caused by inflammation across both sides of one level, or segment, of the spinal cord. The term myelitis refers to inflammation of the spinal cord; transverse simply describes the position of the inflammation, that is, across the width of the spinal cord. Attacks of inflammation can damage or destroy myelin, the fatty insulating substance that covers nerve cell fibers. This damage causes nervous system scars that interrupt communications between the nerves in the spinal cord and the rest of the body.


    And sounds like I will be fine..

    He does want to keep eye on me, so any slight change call him and come in..
     
  23. GreenBayGal

    GreenBayGal Cheese Goddess

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    Well, that sounds like a lot of jibber-jabber to me but I couldn't be happier that the prognosis is positive. :happy0005:
     
  24. longtimefan

    longtimefan Super Moderator Staff Member Super Moderator

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    He thinks I got the t/m when I had celluitis in my thigh.. T/M can be triggered by infections
     
  25. neilfii

    neilfii Hall of Fame Fan

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    Awesome news LTF!!
     

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